Malcolm's treatment

Malcolm met with his respiratory consultant and specialist nurse where they discussed treatment options. They discuss antifibrotic medicines. The antifibrotic medications can have side effects such as nausea, diarrhoea and loss of appetite. These can be anticipated, and helped by anti-diarrhoeal medicines and dietary advice. These  work to slow  the rate of decline by preventing further fibrosing of lung tissue. They can’t heal the already damaged areas and will not improve his condition, but the aim is to stabilise his condition and maintain quality of life. Malcom admits he has started to avoid social situations as he feels embarrassed.

Baseline blood tests for liver function were taken and a plan was made to see him at clinic every three months.  He was supported by his specialist respiratory nurse who sees him regularly. 

Patients who are supported by specialist respiratory teams tend to manage these symptoms better. It is important to consider the psychological effects of having a long-term condition with no cure. He was given a contact number for the respiratory team to help him manage his symptoms.